Cf event song, it's amazing and sooo true!!!!
http://www.youtube.com/watch?v=9BBvch8D9go&feature=youtube_gdata_player
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My fight to live a "normal" life! I have many health problems... I have been diagnosed with cystic fibrosis, alpha 1 antitrypsin deficiency, tracheobronco malacia, GERD, Hashimoto's thyroiditis, Prolactinoma, Trombofilia (??), low IgG and IgA levels.... Sometimes it's just too much for me....
About Me
Lung function
- 04/11/2011 - FEV1 - 32% (+1%) - FVC - 35% (+2%)
- 09/07/2010 - FEV1 - 31% - FVC - 33%
- 01/21/2010 - FEV1-38% (+12%) - FVC-43% (+16%)
- 12/29/2009 - FEV1-26% (-8%) - FVC-27% (-11%)
- 12/18/2009 - FEV1-34% (+18%) - FVC-38% (+22%)
- 12/09/2009 (5 days post op) FEV1 - 16% (+8%) - FVC - 16% (+4%)
- 12/07/2009 (post op) FEV1 - 8% (-16%) - FVC - 12% (-15%)
- 12/03/2009 (in hosp post bronch pre-op) FEV1 - 24% (+7%) - FVC - 27% (+8%)
- 11/23/2009 - FEV1 - 17% - FCV - 19%
- 11/09/2009 (in hosp) - FEV1 - 15% - FVC 16%
- 10/30/2009 - FEV1 19% - FVC 21%
- 09/22/2009 - FEV1 23% - FVC - 26%
- 06/24/2009 - FEV1 - 27% - FVC - 31%
- 05/04/2009 - FEV1 - 28% - FVC 28%
- 10/28/2008 - FEV1 - 28% - FVC - 35%
- 09/04/2008 - FEV1 - 34% - FVC 35%
- 06/08/2008 - FEV1 - 34% - FVC - 34%
- 04/21/2008 - FEV1 - 36% - FVC - 34%
- 05/10/2007 - FEV1 - 45% - FCV - 50%
- 02/06/2006 - FEV1 - 51% - FVC - 59%
Bugs I'm growing (last update 04/14/2011)
- Stenotrophomonas maltophilia
- Pseudomonas Aeruginosa
- Proteus Mirabilis
- aspergillus fumigatus
MEDS I'M TAKING DAILY (last update 04/14/2011)
- IM Kenacort (triamcinolone) once a week
- Inhaler Seretide 25/250 2x2
- NEB - pulmozyme x 1
- NEB - Gentamicyn x2
- NEB - ATEM x 3
- NEB - Albuterol 0,5% - 15 drops x 3
- NEB - Beclometasone 0,8mg x 3
- NEB - Fluimucil 300 mg (acetylcysteine) x 3
- NEB - HTS 8% x2
- Vitamin D3 - 2drops x2
- Actualene 2mg x 2/week
- C-tard (vitC) 1000mg x2
- Melatonin 4mg x1
- Trimeton 4mg x1
- Singulair 10mg x1
- Psyllogel 1 spoon x3
- Toradol (when needed)
- Diazepam 2mg x 2
- Aldactone 25mg x1
- Sporanox (itaconazol) 100mg x 2
- Mycostatin (Nistatin) x 4
- Zythromax - 3 days every week
- Enterolactis plus (probiotic) x 3
- Gaviscon advance x 4
- Ranidil x 2
- Pantoprazol x 2
- Eutirox 50 mg x1
- Becozym (vitamins) x 3
- Lentokalium (Potassium) x2
CPT
- The vest 30 min x3
- Pep mask 15 min x 3
- coach2 10 min x 2
- Acapella 15 min x2
Followers
Mokina
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